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jeanb
#1 Posted : Wednesday, June 20, 2012 12:42:32 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hello to everyone I've not yet met and a very warm welcome to the forum!

I've been part of the forum for the past 9 or so years and really hope you will get much support and encouragement from these super people.

I want to tell you that 9 years ago I was confined to a wheelchair, in agony and really thought I'd never have a life again. NOT TRUE!! Always try to be positive. There are so many new treatments coming out now so we have a huge variety of meds to help us.

THERE IS LIFE AFTER RA DIAGNOSIS and don't listen to anyone who says otherwise! OK - it's not always a bed of roses, sometimes it's darned difficult - BUT DON'T EVER GIVE UP. There is ALWAYS light at the end of the tunnel.

Although I am still wheelchair bound most of the time, due to the degenerative nature of the disease and the lack of adequate treatment in the very early days, life is still a huge joy. I have wonderful caring friends (some of them other members of this forum) and a super family.

One or two of the joys in my life: I know I can't pick my grandkids up but they know about my "poorly" bones and just climb up by themselves when they want a hug - wonderful!

Being pushed by my lovely husband through Dunham park, watching the deer and having lunch in the hall restaurant.

Meals out with friends and family.

If you are able to go out - do so - it stops you dwelling on your problems. Make sure you have adequate pain relief until your meds kick in and pester if you don't get them.

Looking forward to getting to know you

Love Jean


smith-j
#2 Posted : Wednesday, June 20, 2012 8:33:27 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 714
Jean your post has brought tears to my eyes. You have summed it up perfectly.

Thank you for taking the time to show you care.

Jackie
xx
sylviax
#3 Posted : Thursday, June 21, 2012 6:57:33 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Jean - I'm newly diagnosed and coming to terms with it all. Many thanks for your inspiring post - it's wonderful to hear that there is still great quality of life with RA. It's confirmed my belief that I must think positive and focus on all the things I can do and treat this as I would any other challenge!

Stay well and happy - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Sue10
#4 Posted : Thursday, June 21, 2012 5:44:10 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 6/18/2010
Posts: 351
Location: Herne Bay Kent
Hi Jean

A really positive post. It is good to focus on all the lovely things in our lives.

Thanks

Sue
BarbieGirl
#5 Posted : Friday, June 22, 2012 9:57:17 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,110
Location: London
Ahh Jean!!!
This says it all, much love x x Smile
BARBARA
m_nanasbaum
#6 Posted : Saturday, June 23, 2012 5:57:59 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/5/2009
Posts: 90
What a lovely post, Jean. I have just read it to my hubby, as he belongs to the half empty glass brigade, who finds it hard to see all the good things around him. You are so right, that it is so important to stress the positive in ay for you.your life.

I have found my life rather tough the last 3 years. I lost my brother within 3 months from cancer, my husband has had 2 operations, also wih cancer and 3monhs ago my mother died. As I was the only sibling, a lot was on my shoulders, making a funeral and clearing up my mum`s flat.

Despite everything that has happened, I have a lot of good things. My husband and I are still together after 40 years. I have two lovely sons, who care a lot, 3 grandchildren, the youngest only 15 months old, an absolutely joy. I love my garden, although I can`t do much anymore, but I have got a gardener, who comes every other week, and does the hard work. I used to love walking but can`t do much now, but we have our car, so we can go out nd enjoy a meal alone or with friends. I often say to my husband "nobody owes us a living!" If we are feeling miserable, do something about it, don`t expect others to cheer up you day.

I wish you all a lovely week-end without pain

Merete
Julia17
#7 Posted : Saturday, June 23, 2012 11:25:03 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 2/18/2010
Posts: 1,098
Location: farningham kent
Hi Merete

Just wanted to drop a few lines and say I m sorry to hear of your sad loses over recent days, life must have been extremely difficult for you. Really pleased you have been able to move on after all the sadness and see all the good positives things still there in your life, life is here for living even with all the ups and down, I know I need reminding of it sometimes.

Best wishes Julia xx
jenni_b
#8 Posted : Tuesday, June 26, 2012 6:57:22 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Jean!

What a cracking lady you are... I'm so blessed to have met you and the others on this forum.
It's lovely welcoming new people because I know how very important meeting other younger members (however old they are in yrs- its outlook that matters) was and is to me.
It's not the end of life, it's just brings unwelcome changes but you just get through those bits. Life is rarely dull round here, that's for sure and it's certainly full!

Lots of life to be had.
Jenni xx
how to be a velvet bulldoser
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